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About This Project
Summary
Rare Connections in NMOSD brings together three patients – Craig, Alex and Marie – to share their stories through the exchange of personal letters. Their raw letters underscore the debilitating impact of NMOSD and reflect the challenges that people with rare diseases face: misdiagnosis, feeling isolated, and lack of care access. However, in the film, they learn that they are connected by their resilience, determination and need for community.
Goals & Objectives
Rare Connections in NMOSD is a short film designed to drive connection within the global NMOSD community and spark dialogue about health equity in rare disease. The film elevates patient voices to drive education, furthering efforts to reduce time to diagnosis and improve patient outcomes.
Results & Impact
Results underscore film’s impact in raising global visibility of NMOSD 35,500+ views on YouTube 100+ attendees at premiere 5,000+ impressions on micro-influencer posts Screenings at leading neurology medical congresses Positive coverage from trade media Moving feedback from HCPs, advocates, patients
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